Scott
was born on July 7th 1959 in Cleveland, Ohio to Don and
Christine Barrish. He was a healthy baby; however, when
he started to walk and crawl he had some difficulties. His
parents took him to numerous doctors around the area, but
they told them that "he would out grow this problem".
His sister Donna was born on March 14th 1961. The next Christmas
he developed the measles which were quite bad. He had a
very high fever for several days, and at that time doctors
were not available during the holidays. His grandmother
told his mother that "she never saw measles that were
that bad". During the Christmas holiday he got progressively
worse, and his great aunt Helen told his mother about her
doctor that was in the area. His parents called around to
different hospitals in the Cleveland area to see when they
could make him an appointment to see a doctor. Nothing was
available for several weeks and his parents, grandparents,
aunts, and uncles were quite concerned about his grave situation.
The day after Christmas his mother took him to see the doctor
that his great aunt recommended. He was a European doctor
who was quite well known in the area. The doctor told his
mother that he thought that "it was post measles encephalitis,
but he wasn’t sure". He immediately sent his
mother and him to University Hospital in Cleveland that
was the best hospital in the local area. Numerous medical
tests were taken on him, and he was put into isolation because
at that time measles were a serious health risk. Scott was
hospitalized for several weeks during this time where he
got somewhat worse. His parents finally brought him home
again where he steadily got better. His sister Kathy was
born on January 21st 1963. Every year especially during
the winter Scott would become extremely sick, but no actual
diagnosis could be made on him. He never seemed to be able
to walk too far without falling down and had to go over
to a chair or table to pick himself up which is extremely
unusual for a child.
Once again his mother took him all over the area to different
doctors. One doctor his grandmother recommended told his
mother that "he has no time for her, and he had no
idea what to do for her son". This doctor never referred
them to any other doctor that could help them. She came
out of the office crying to Scott’s uncle Bud about
what this doctor said to her. Then after this his mother
took him back to the first doctor from Europe. He said,
"it looks like Little’s Disease", which
is now known as Cerebral Palsy. At that time medical science
was not too advanced to recognize different health conditions
and or disabilities.
Scott was always a curious little boy trying to figure out
how to do things and ask questions about the world around
him. He developed an unique personality during his early
life. In 1965 when Scott was ready to go to school his mother
went to sign him up at the local school; however, they wouldn’t
accept him due to his physical disability. His mother was
very distraught because of this. The same doctor told his
mother about a special school in Cleveland called Sunbeam
School for crippled children. This school was in existence
since 1929 and served thousands of children with disabilities
in the area. His mother made an appointment to visit the
school and for Scott to get evaluated from the principal
who was an ex-former catholic school teacher. Scott started
to school there the next fall. He had a two hour each way
bus trip to the school and back home again because the family
lived on the outskirts of Cleveland which the school bus
had to pick up around twenty other kids with various disabilities
in the area that all attended Sunbeam School.
Scott would get extremely sick almost every winter due to
the cold and harsh winters in the northeast. He attended
grammar school and junior high at the same school which
was just for crippled children. He made friends with the
kids who some of them are still friends forty years later.
At that time the education system for children like Scott
was extremely limited, and he didn’t receive a proper
education, but it was just a basic education to teach these
children how to read and write and do some basic math. Scott
had some surgeries on his legs and hands to help him, but
these surgeries never actually did much to help him.
During the summer Scott was extremely healthy and his family
would go on vacations throughout the east coast and south.
They took vacations to New York, Washington D.C., Gettysburg,
Norfolk Virginia, Williamsburg Virginia, and in 1973 the
family took a two week vacation to Florida where Disney
World just opened up the year before. Scott always was interested
and intrigued with the Space program, and his father took
him to Cape Kennedy to see NASA and where the missions to
the moon begun while his sisters and mother stayed in the
hotel and played in the pool. His father worked in different
chemical and auto factories in Cleveland and would take
him to numerous Cleveland Indians baseball games during
the summer time which they both enjoyed.
In 1974 Scott had major hip surgery which almost took his
life from pneumonia and a severe bladder infection. Scott
was in the hospital for two months during the summer. He
finally was well enough to go home the day that President
Richard Nixon resigned from office which Scott always remembers.
The next spring he was ready to graduate from Sunbeam school
and move on to high school. The same year the federal government
passed the mainstreaming of all disabled children in schools
which at that time was extremely controversial. Before this
law children like Scott were pretty much isolated and separated
from so called "normal" children. He graduated
from Sunbeam School in June of 1975. The next year he would
be attending Mentor High School which was only around eight
miles away from the family home which was a regular high
school with a special classroom which was a storage closet
before.
There were about seven or ten other physically disabled
students in this classroom. For the first few months Scott
and his fellow classmates were not allowed to eat lunch
in the regular cafeteria because the school thought it would
be a safety hazard. This made the families of the disabled
students quite angry with the school. It was the school’s
policy to have their disabled students eat lunch in their
small little classroom. During high school Scott was only
mainstreamed into a few classes such as: history, economics,
and political science where he did extremely well in these
classes. Some of the teachers at the school didn’t
want students with disabilities in their classroom because
they thought it would be a distraction. The school finally
allowed Scott and his classmates to eat their lunch in the
cafeteria later the next year. Their special education teacher
was a young woman who wasn’t too enthusiastic about
teaching her students, and she didn’t have much patience
with them. Scott would get into trouble with his teachers
because he didn’t think he was treated fairly at times
in class projects and other classroom activities. Every
winter Scott would have major health problems which he missed
many days of school due to these problems. He was hospitalized
in 1976 due to severe urinary retention which was later
found out to be caused by the Swine flu shot that President
Ford recommended to the entire country that wasn’t
thoroughly tested. That same winter Scott had pneumonia
and other health problems that he now contributes to this
flu shot. He would try to make friends with the so called
"normal" students, but he didn’t have much
success in making friends.
In 1978 Scott was ready to graduate from high school and
the school psychologist wanted to meet with his mother about
Scott and his future. Scott and the psychologist met several
times during his years at high school. The teacher also
wanted to meet with his mother at the same time. During
the meeting the teacher and the psychologist told his mother
that, "Scott has totally unrealistic goals in life
that are not achievable for somebody like himself with a
severe physical disability". His parents always wanted
to do the best for him, but many times they were led in
the wrong direction for him because nobody knew for sure
what was best. Scott graduated from high school in June
of 1978. The next fall he became a client with the Ohio
Bureau of Vocational Rehabilitation to help him with his
future.
In the fall of 1978 Scott was evaluated by the Ohio Bureau
of Vocational Rehabilitation at their office in Painesville,
Ohio. They had a special bus that was wheelchair equipped,
so his mother wouldn’t have to drive him back and
forth. He went there for several weeks during this time.
They had him do numerous job tasks and had other psychological
evaluations done. This was the time before computers and
electric wheelchairs that came available many years later.
Scott could always maneuver his manual wheelchair somewhat
around the house; however, he needed to be pushed everywhere
else. He took all of these tests, and after they were all
over the counselor wanted to meet with Scott and his parents.
During this time, he was having health problems once again.
According to the counselor, Scott wasn’t capable of
attending college or doing any type of meaningful work due
to his disability. His parents and he were quite dejected
and the counselor recommended was for him to enter counseling
because his mother and him had serious difficulties being
at home all day with each other. He had nothing to do besides
watch TV and things like that. He and his mother would have
serious arguments in the house, and his father didn’t
want to come home from work because he didn’t know
what would happen when he got inside the door.
Scott did go for some counseling during this time, but the
psychologist had no solutions to his problems with his mother.
For his graduation gift from high school his parents bought
him a short wave radio where he could listen to radio broadcast
around the world which really interested him. He would listen
to the BBC, radio Moscow, radio Beijing, and radio Baghdad
to hear about news and events in these countries. He would
write letters and correspond to these radio stations throughout
the world, and he would receive mail from these exotic places
such as; calendars, post cards, and newspapers throughout
the world. One year, he received a beautiful calendar from
China. Scott would spend most of his day watching TV and
listening to talking books on tape mostly about historical
events, politics, psychology, science fiction, and religion.
During the summer time he would sit underneath a big oak
tree and just watch the cars go by while listening to the
radio or listening to a book. He had no relationships outside
of his family and every summer he would attend camping programs
for people with disabilities around the Cleveland area.
In the winter of 1984 Scott’s parents bought him his
first simple computer which was a Commodore 64 which was
the first simple computer that was on the market at that
time. It would be considered a toy now, but back then it
was remarkable about what it could do. He would buy numerous
games, word processing programs, and would spend hours each
day working on his computer in his bedroom. This was a great
relief for his parents that finally there was something
that he could do and do well. During the next several years
he became extremely knowledgeable about things dealing with
computers and technology.
In the fall of 1987, Scott thought that new doors were opening
up for him, so he decided to get back into contact with
the Ohio Bureau of Vocational Rehabilitation. He wanted
them to reevaluate him due to the advances in technology
and etc. That next winter the Bureau of Vocational Rehabilitation
sent Scott to get evaluated at a local hospital that had
a specialized rehabilitation center using the modern technology
and computers. He went there for five Mondays in a row which
his parents would drive him. His parents had a good friend
that lived in the area so they went to visit him when Scott
was attending these classes. They evaluated Scott using
computers and other technologies that weren’t available
in 1978. The staff was amazed about what he was able to
do on a computer with different programs. After these classes
were finished the director of the program recommended to
the Bureau of Vocational Rehabilitation that Scott should
attend the local community college for computer science,
and he needed an electric wheelchair to get around. Reliable
wheelchairs like this only came on the market a few years
before. His parents and Scott were finally happy that he
was now able to do something with his life.
He could not start to go to college until he acquired his
electric wheelchair. His father’s insurance finally
agreed to pay for the chair in the spring of 1989. He was
now able to go places by himself without his family having
to push him around which opened up an entire new life for
him. For almost a dozen years nothing was available to him
and nobody ever thought that he could do anything with his
life due to his severe physical disability. During this
time, both his sisters got married and moved out of the
family house and his sister Donna and her husband moved
to Naples, Florida where his parents and he would go every
winter for a few weeks to get away from the cold winter
in Ohio.
In September of 1989 Scott started to attend Lakeland Community
College in Mentor, Ohio which was the local community college.
That year, Congress was debating the Americans with Disabilities
Act. Scott was extremely interested in this legislation
because it would help him in the coming years if it passed.
The first year Scott attended community college he earned
two A’s, two B’s and two F’s which he
didn’t know what to make of this. He started going
for a certificate in computer software from the college,
but he could not take the type of math classes that were
needed. He took some introductory computer science classes
and some political science classes during his first year.
The next summer, 1990 he took an introductory to business
class where he earned an "A" in it. The instructor
was extremely impressed with his knowledge about the business
world and told Scott that if the ADA passes this would really
help him in life.
On July 26th 1990 President George Bush signed into law
the Americans with Disabilities Act. Scott was always interested
in political science and history. He took numerous political
science and psychology classes at the local community college
for the next several years which he earned mostly "B’s"
in them. His one instructor John Platz’s was the local
county commissioner and Scott and he would talk about local
events in the community. Scott was hospitalized in the spring
of 1992 with bronchitis. He would acquire bronchitis and
pneumonia fairly easily in the late winter or early spring.
His doctor was getting concerned about these respiratory
infections because he tried various antibiotics on him that
were no longer being effective. During the same time his
parents were trying to sell their family home in Cleveland
because they wanted to move to Naples, Florida where his
sister lived. His father had just retired from his job,
and they thought that Scott would be healthier in the warmer
weather because he would not have these respiratory infections
during the summers in Ohio.
Scott was in and out of the hospital most of the spring
and early summer due to numerous other infections. He got
better after a long battle with these infections. He returned
back to Lakeland Community College that spring which would
be his last semester there. He would only attend classes
during the summer and fall due to his health situation.
His parents finally sold their family home in the summer
of 1993, and they were making plans to move to Naples, Florida
in the early fall of that year.
Scott and his parents arrived to Naples, Florida on Halloween
night of 1993 where they stayed at his sister’s home
for a few days before their new house was ready to move
into. His parents bought a nice one story home with no steps
for Scott to be able to get around better. His old house
in Cleveland had three stories which he never saw for years
before. The family moved in and Scott was ready to get back
with his education so he got into contact with the Florida
Department of Vocational Rehabilitation in Naples, Florida
in the winter of 1994. They wanted their own psychological
evaluation from their psychologist to see whether or not
Scott was capable of completing his associate’s degree.
That spring the Department of Vocational Rehabilitation
sent Scott to a psychologist in Fort Myers for several sessions
to get evaluated once again. Scott was doing well in Ohio
at the local community college; however, Florida wanted
their own psychological assessment done by their own psychologist.
His parents drove him to this small little office in downtown
Fort Myers where this psychologist had his office. During
this time Scott was having some health issues that were
not too serious. He met with the psychologist the first
day, and the psychologist made Scott do a paper and pencil
test to see if he could do basic mathematics and other types
of tests.
Scott has extremely limited use of his hands; so therefore
it is quite difficult for him to write with a pen. He told
the psychologist about this; however, the psychologist just
told him to do his best and not worry about it. The psychologist
and Scott met several more times during the month. After
the counselor from Vocational Rehabilitation received the
report from the psychologist regarding Scott’s abilities
she wanted to meet with him to discuss what the psychologist
recommended. In the psychologist’s report it said
that, "Scott could take some college classes; however,
he could never earn any types of college degrees due to
his level of disability and other factors that hinder him".
During the same time Scott met with the counselor from Edison
Community College to visit the campus and to take their
test for entrance. They had all their tests on computer
which made Scott’s test scores on them to be greatly
enhanced. Once again Scott didn’t know what to think
about this.
He had found out about a special program in Clearwater,
Florida called Abilities of Florida which had a special
program for individuals with severe physical disabilities
to help them find jobs, get evaluated from the Department
of Vocational Rehabilitation and get computer training.
Abilities of Florida was created in 1959 to assist people
with spinal cord injuries. He was hearing good things about
their program and wanted vocational rehabilitation to send
him for a two week evaluation to find out whether or not
he could complete his associate’s degree. The one
draw back was he would have to live on their campus during
this time because it would be an intense evaluation and
from Naples to Clearwater is about 160 miles. His Vocational
Rehabilitation counselor was extremely opposed to his idea.
He insisted that the psychologist evaluation was totally
unfair because of how the psychologist evaluated him with
strictly paper and pencil tests.
Scott finally got the ok from the Vocational Rehabilitation
counselor’s supervisor to attend the Abilities of
Florida program in November of 1994. He moved into a room
on Sunday evening and his parents went back to Naples. He
met with everyone that would be working with him for the
next ten days. They had numerous computer stations in their
office that people were working at. They also had people
working one on one with the clients to help them with writing
and typing things down. It was basically like the test Scott
had in 1987 in the hospital in Cleveland. The very last
day Scott was there he met with a counselor and she told
him that she thinks "that his psychological evaluation
from that psychologist in Fort Myers is totally bogus and
is a typical stereotype of a person with a disability, and
she is recommending that the Department of Vocational Rehabilitation
helps you with your college education because you are quite
intelligent and you know a lot about computers and other
things". Scott immediately called his parents and told
them about what this counselor has recommended.
In January of 1995 Scott started at Edison Community College
taking some introductory math and English classes. He was
having difficulties with his math because he had no way
to write down the problems and to figure them out. Under
the Americans with Disabilities Act the school was responsible
for helping Scott to solve this problem due to his disability.
There was a young woman in the same class that worked at
an attorney’s office in the area and she helped him
to write up a letter regarding his situation concerning
his math course to the provost and the math department.
The provost, the counselor for students with disabilities,
the director of the math department and Scott met all together
in a small office because he was falling behind in his math
course because there was nobody working with him.
The provost of the college became somewhat angry with Scott
because of what he wrote in the letter regarding the counselor
for students with disabilities because she had no solutions
for him to continue on with his math course. The provost
wanted Scott to apologize to her, but he said, "I have
nothing to apologize to her because I did nothing wrong!"
The meeting went on for a while and Scott refused to apologize
to the counselor. The young woman who was in the same class
also attended the meeting in Scott’s behalf. She was
totally amazed about how he stood his ground against the
counselor and provost. The director of the math department
more or less stayed out of the conversation. The meeting
was over and no real solutions were made for him. During
the next few days the counselor met with the director of
the math department to find a solution to Scott’s
difficulties. The solution was for the college to have an
excellent student who was good at math to work one on one
with Scott and his math course. The first individual was
an older man, but it didn’t work out because this
man wouldn’t allow Scott to work out the problems
by himself which wouldn’t teach him how to solve algebraic
expressions. Scott earned a "B" in the class;
however, he wasn’t too sure about how much he learned
due to the situation with the older man.
That summer the provost fired the counselor for students
with disabilities, and acquired a new counselor that was
more familiar with disability issues. She started to interview
possible new math tutors to work with Scott on his math
courses that were needed if he wanted to attend any University.
The state of Florida requires students in Universities to
have at least six credit hours of mathematics. Scott always
wanted to attend a four year university and to earn a bachelor’s
or even a master’s degree. The next fall Scott met
Felix who was a middle aged man that was born in Cuba that
wanted to work with Scott on his math. Felix was an excellent
math student and wanted to become a teacher. He and Scott
started to work one on one for six or eight hours a week
on his math homework and assignments. Felix would allow
Scott to work out the problems by himself which was somewhat
difficult, but Felix had much patience to do this that the
other math tutor didn’t have. Felix would attend classes
with Scott and would help him to take notes and write down
assignments for him. This worked out to be great and Scott
learned how to solve algebraic expressions pretty well.
For the next year this worked out to be a great arrangement.
Felix was a somewhat shy and quiet man, but working with
Scott he gained confidence in himself which helped both
of them. During the next two years, Scott became the president
of the student government association and won numerous academic
awards from the college, and the provost Dr. Louis Trainer
was quite amazed about Scott’s achievements at the
campus. He became Scott’s biggest supporter at the
campus and apologized to him for getting so upset at the
first meeting about his math situation. Scott also struck
up a friendship with an older man named Chip who was a wealthy
business man that was going for his associate’s degree
at the same time. Chip was from Boston and had his own business
which he sold and he and his wife moved to Naples to get
away from the cold weather. Scott became extremely active
in school activities while he was president of student government.
The Students with Disabilities counselor Chris Soto was
also very helpful in acquiring things for the college to
help disabled students. She was quite amazed with Scott’s
abilities and wanted Scott to continue on towards a bachelor’s
degree.
Scott graduated from Edison Community College in 1997 and
was making plans on attending the University of South Florida
in Tampa to earn a bachelor’s degree in either psychology
or social work, but he needed to move away from the safety
of his parents’ home in Naples. The year before this
Scott found out about the Home and Community Based Services
Program that was available to help individuals with severe
physical or mental disabilities to live on their own with
what is known as support services. He found out about the
program, and he asked his social worker from the Department
of Children and Families Services. She became extremely
upset and wanted to know where he found out about this program
because at that time this program was a little known program
that people with disabilities weren’t supposed to
know about. The summer before Scott was supposed to graduate
from Edison Community College he applied to the program,
but there was a huge waiting list of other individuals who
wanted services through the state. At that time only about
thirty individuals a month statewide were becoming eligible
for the program.
In October of 1997 Scott and his parents attended a huge
meeting in St. Petersburg regarding services for persons
with disabilities in Florida. There were several hundred
people at the three day conference that were all concerned
about services here in Florida. Everyone that met Scott
was extremely impressed with him and his accomplishments.
He was talking to everyone at the conference about wanting
to attend the University of South Florida and having to
move to Tampa and live pretty much on his own. The director
of the Developmental Disabilities program’s secretary
was listening to him talk to other people around him, and
she took an interest in his situation. Scott’s name
was on the waiting list for the program since that summer
and his new social worker was trying her best to get him
onto the program as soon as possible. The secretary took
his information down and the meeting was over. His parents
and him returned back to Naples, and there was a message
on their answering machine telling Scott that the state
had just approved for him to be onto the Home and Community
Based Services program. His parents and he were quite amazed
about how quickly the state approved him after a long struggle
that was troubling for him.
Scott had all of his paperwork in order to be accepted to
the University of South Florida and wanted to start attending
school the next summer. He wanted to reenter the Abilities
of Florida program in their independent living skills training
before moving out on his own because he was unsure about
whether or not he could live on his own. His parents were
concerned about this too due to his level of physical disability.
He made plans with the Abilities of Florida to enter their
program early in 1998 until the summer session would start
at the university. He was eligible to receive state services
under the Home and Community Based Services program. He
needed what is known as a support coordinator to help him
acquire the services he needed. At that time, in the Naples,
Fort Myers area there was only two agencies that handled
clients for the program. The one agency only had about ten
or twelve clients, and the director was unsure how to handle
his case being in Tampa. This other agency had over 300
clients in the area and had around twenty support coordinators.
He made arrangements with the director of this agency which
was the only agency that would be able to handle Scott’s
situation being in Tampa. Scott had good goals in furthering
his education and developed his own support plan for his
future. This woman who was the director of this agency had
her own ideas about what Scott should do with his future.
She never heard of the Abilities of Florida program which
has been in existence since 1959. She wanted Scott to continue
living at home with his parents while her agency would work
with him on activities of daily living and things like this.
She had her own agenda for him which made Scott quite angry,
but there were no other agencies to handle his situation.
She and his new support coordinator met with the family
during the Christmas holiday about what she thought possible
for him. She had claimed that she had two master’s
degrees and was extremely knowledgeable about persons with
developmental disabilities. She gave Scott problems because
he did not fit with her typical clients and he challenged
her on this.
The support coordinator who was quite nice delivered an
agreement that Beverly Morris of the Human Foundation Services
made up that Scott would have to stay at home with his parents
while her agency did their best to find him what she thought
he needed. After an argument on the phone with her Scott’s
father talked to her about his goals of attending the Abilities
of Florida program once again to learn how to manage on
his own for a few months before attending the university.
She finally gave her ok with some hesitations. Scott was
already accepted into the Abilities of Florida program.
A few years later, the state of Florida revoked her licensed
to do business in the state. Her agency was banned from
the state due to many complaints from clients and their
families. Scott was so pleased at this because she gave
him a hard way to go.
In February of 1998 Scott moved into a small apartment on
the campus of Abilities of Florida where he would stay for
the next few months learning the skills he needed. During
the next few months, he was somewhat disappointed in their
overall program due to their lack of funding from the state
of Florida. It wasn’t the same program any longer,
and they had a new director that wasn’t too knowledgeable
or supportive of the people living there. A woman who was
working with Scott to find him an apartment at the university
took him several times over to the university to meet with
counselors and find accessible housing for him. They eventually
found a place called Fontana Hall which was a dorm style
apartment that was accessible to him. He met with a Vocational
Rehabilitation counselor that was also physically disabled
himself that was extremely impressed with Scott’s
academic accomplishments at Edison Community College.
Scott would start to the university during the summer session
taking a political science class which he did fairly well
in it. Bob Ellis who was his Vocational Rehabilitation counselor
suggested that Scott try to earn his bachelor’s degree
in social work, so he would take the introductory classes
he would need to enter the school of social work in the
winter of 1999.
He met several times with Sally Spear the director of the
social work school, but she wasn’t impressed with
him, in his two introductory social work classes he earned
one "A" and one "B" in them. She told
him, "it isn’t realistic for you to enter the
school of social work due to your physical limitations".
Scott was always interested in earning a master’s
degree in rehabilitation counseling, so he thought that
the school of social work would be extremely beneficial
to his goals. She and the department allowed Scott to take
some classes in the program during the winter, but half
way through the semester the department basically told him
not to go any farther with the program. So Scott once again
was denied equal access, and he made a grievance with the
school of social work, but nothing was done about it.
After this situation with the social work department, Scott
met with the director of the Interdisciplinary Social Science
program and was immediately impressed with Scott’s
achievements and accepted him into their program without
any hesitation. For the next year Dr. Gagan and Scott would
meet several times discussing his goal of earning a bachelor’s
degree and finally earning a master’s degree. He was
a great influence on Scott and gave him encouragement to
overcome his physical disability because this professor
had a hearing impairment himself. Scott earned his bachelor’s
degree within twenty two months after starting to the university
and was trying to be accepted into the graduate program
in rehabilitation and mental health counseling.
In March of 2000, Scott met with a few professors from the
department of rehabilitation counseling to discuss his goals
of earning a master’s degree. The one professor Dr.
Kelley wasn’t too impressed with his academic performance;
however, the other professor Dr. Ferrandino was encouraged
that Scott has progressed this far having a somewhat severe
physical disability. He finally received a letter from the
department that he was being accepted on a provisionary
basis during the next semester. He would have to complete
twelve hours of classes while earning a "B" average.
He took the medical aspects of disability class with the
one professor that gave him difficulties in his graduate
school interview because she was the only professor that
taught it. Scott earned a "C" in the class which
concerned him because in graduate school "C’s"
are a poor grade. During the fall semester he took three
other classes earning "B’s" in them which
pleased him.
During this time he decided to start his own home health
care agency called Been There, Inc. to help other individuals
with disabilities with the types of services Scott was receiving,
but was never pleased with the individuals that other agencies
would send out to help him. He thought that he could do
a better job in providing services to individuals like himself.
He had to fill out vast paperwork to start his own agency
and had numerous difficulties getting started due to the
bureaucracy. He finally was approved to become a provider
of services to people with developmental disabilities in
Tampa Bay.
In the spring of 2001 he was going to take a theories of
counseling class with the director of the program. Scott
and the director had talked in his office many times before
he took the class and Scott was somewhat concerned about
the professor’s ideas about persons with disabilities.
This professor is a well known person with programs that
work with this population. He and Scott would have heated
discussions about the treatment of individuals with disabilities.
The class was not too difficult for him to understand; however,
the way that the professor taught it was quite subjective
in nature and his grading system. Scott was also in two
other classes during the semester. At the end of the semester
the professor gave Scott an incomplete because he didn’t
think that Scott knew the material to well, so he suggested
that he would take the class the next spring and for Scott
to do better in it with a passing grade. This really bothered
Scott because he thought he knew the material quite well.
The next semester, Scott signed up to take two classes which
one was the research class with Dr. Kelley who was the professor
that gave him difficulties in the past. She did give him
problems in this class; however, he eventually earned an
"B" in it after a long struggle. The other class
gave Scott no difficulties. In the spring semester, Scott
signed up to take the theories of counseling class once
again with the same professor, but the same types of issues
cropped up again between Scott and the professor. As the
semester progressed, the professor would make certain comments
to Scott that he thought were somewhat derogatory to him.
The very last week of class the professor wanted to see
Scott in his office. They met before class, and they discussed
the same issues that came up during the last time Scott
was in the class.
As the meeting was ending, and nobody else was around the
area the professor told Scott. "the only reason why
you have came this far in your education was from professors
feeling sorry for you due to your disability". This
made Scott quite angry and immediately came home to his
apartment and wrote up a grievance letter concerning Dr.
William Emener’s comments to him. Dr. Emener is a
noted psychologist and professor at the university. The
next morning Scott met with the Students Disability Services
director to discuss this serious matter about the professor.
She suggested that Scott get into contact with the dean
of the graduate studies, and the dean of the arts and sciences
where the rehabilitation and mental health counseling program
is located in the university.
Scott met with the dean of the graduate studies; however,
he could not get involved with his situation because he
and Dr. Emener co-wrote a book together. Scott then went
to the office of Equal Opportunity that helps individuals
with civil rights matters to discuss it with them. They
wrote down what occurred the night before, and Scott was
unsure about taking the final exam in the class. They recommended
that he take the final exam in the class. He finally decided
to take the test and see what happens. Scott filed a official
complaint with the professor and with the school because
he felt that the professor showed extreme prejudice and
bias against him. It took several weeks for the school to
investigate the matter meanwhile Scott received a "C"
in the class which didn’t surprise him.
Scott finally received a reply to his complaint, and it
basically said that the professor shouldn’t have said
that to him; however, there was nothing more to be done
about the matter and if he wanted to appeal it he could
but he decided not to. He just wanted it to be on noticed
that the professor who is considered to be a well known
authority on people with disabilities would say that to
a student.
Scott didn’t know what to think about this. He started
off the next semester taking two classes but was unsure
about whether or not he would continue on for his master‘s
degree. There was a new director of the rehabilitation and
mental health counseling program who was also Scott’s
academic advisor Dr. Charlotte Dixon encouraged him to continue
on with the program, but after a while Scott decided to
withdraw from his classes and to work on his business. During
this time Scott’s agency continued making progress
in obtaining clients and had good success in finding extremely
qualified individuals to work for him. He was nominated
to the Interagency Quality Council that met several times
throughout the year to discuss the Home and Community Based
Services program. His parents would drive him all over the
state to attend these meetings and he became a well known
individual with state officials. His parents were encouraging
him to continue on with his master’s degree because
nothing stopped him before from achieving.
This incident with the professor really discouraged and
disheartened him. Scott was somewhat unsure whether or not
to continue on with his education. He did take some classes
the next semester, but he withdrew from them during the
semester. He was put on academic probation because his grade
point average dropped below a 3.0 which in graduate school
is the lowest a student must have to continue on. This was
due to the low grade that the professor gave him in the
class. He decided to work on growing his business which
was progressing a long quite well. During this time, Scott
did a lot of thinking and talking to his parents about what
he should do about his education.
In the summer of 2003, Scott decided to enroll in a substance
abuse class. He was finally on his way of earning his master’s
degree again. During the next semester, he enrolled in two
other classes which he did quite well in them. It was now
time for Scott to start working on his practicums and internship
to be able to graduate with a master’s degree. Scott
was concerned about where he was going to do a practicum
due to his transportation problems. He decided to do his
first practicum at Self-Reliance which is the center for
independent living in Tampa. He visited the facility in
late November of 2003 and was somewhat leery about it. He
would have to take two city buses each way and spend over
two hours one way getting there and back home again. The
center is only like ten miles away from Fontana Hall, but
city buses take a long time to get from place to place.
He decided to try it the next semester.
After the Christmas holiday Scott was taking the practicum
class and another class while working at Self-Reliance for
sixteen hours a week. He would leave home around 9:00am
and wouldn’t get to the center until around 11:00am.
He would then leave the center around 3:00pm and wouldn’t
return home until 5:00pm which was a very long day for Scott.
He would have to do this for four days a week while being
in school one day a week. The worst thing about working
at Self-Reliance was that they just moved into a new building
which wasn’t totally accessible for people in wheelchairs.
He would have to go to the local drug store to use the restroom
which he wasn’t comfortable about leaving the center.
They were working on getting a wheelchair accessible restroom,
but the director could not tell him when this would occur
due to their budget. He did this for about a week or so,
but he could not deal with the long bus ride and not having
a restroom that was accessible to him. He talked to the
professor that was teaching the class about his concerns
about his practicum. The professor told him to talk to the
other professor that was in charge of the practicum sites.
This professor and Scott had a good relationship from the
start. Scott and the professor both agreed that the best
solution to his problem was for Scott to do his practicum
with Students Disability Services on campus which helps
students with disabilities. Scott made arrangements to talk
to the assistant director of the S.D.S. office which she
and Scott had a good working relationship during the last
five years. She was also physically disabled herself, and
she had earned her master’s degree from the same program
fifteen years before. She spoke to the director and agreed
to allow Scott to work there for sixteen hours a week which
was broken up into four days.
During this time Scott was continuing building his business
and was talking to the professor about using his own agency
for the practicum and internship, but there were concerns
about Scott being the boss of his own company and the professor
was extremely concerned about supervision part of the practicum.
Scott started working at the Students Disability Services
office where he was responsible for delivering exams around
the huge campus. His electric wheelchair could make several
runs to each building around the huge campus in a few hours
that persons who were walking to deliver exams would take
them a half hour to deliver one test where Scott could do
the same thing within ten minutes in his wheelchair. He
was also working on several research topics for the Student
Disability Services office and would sit in on staff meetings
on Friday mornings which he enjoyed.
As the semester progressed he and the professor would discuss
using his own agency to do his next practicum and later
internship. There were still questions about supervision
for Scott being his own boss. The assistant director of
the Students Disability Services office also indicated to
the professor that she didn’t think it was appropriate
for Scott to do his next practicum there due to their overall
duties in the office. She suggested that they work out something
with him for him to use his own agency because he was doing
more types of jobs with his own agency then he was doing
at the Students Disability Services office. Scott had developed
a good working relationship with several people that work
for the state at the Department of Children and Family Services
in Tallahassee through his agency and being on the Interagency
Quality Council.
He suggested to Dr. Ferrandino that worked on the practicum
sites that he would acquire somebody from Tallahassee to
be his supervisor for his agency. He especially was considering
this one professor that works for the state to help him
with the supervision part of the practicum. Scott emailed
this professor about whether or not he would help him with
the practicum, but he wanted to know more information what
he would be responsible for. He also wanted to talk to Scott’s
professor to find out how he would handle this. This professor
that works for the state knew Scott for several years and
was extremely helpful for him if he had problems with a
certain thing with his business because Scott is doing business
with the state and this professor is responsible for quality
assurance with vendors.
Scott finally worked it out so he could use his agency for
his practicum and internship classes to be able to complete
the program. It worked out extremely well for everyone concerned
because living in Florida there are limited agencies that
work with people with physical or developmental disabilities.
During the summer semester, Scott worked on his practicum
through his agency and he attended another Interagency Quality
Council meeting which was held near the university in June.
The summer semester ended and Scott earned an "A"
in the class, and he was entering his last semester at the
University of South Florida. He would be taking two classes
in the fall semester which were the internship class and
the group theory class about how to counsel people in groups.
The professor that was assisting Scott with his internship
was quite impressed with his overall accomplishments being
physically disabled and receiving the same types of services
that he was also providing through the state.
During the fall semester, the state of Florida was hit by
four hurricanes which was quite difficult for Scott to deal
with living pretty much on his own. The last hurricane that
hit Miami in late September there was supposed to be another
Interagency Quality Council meeting in Miami that week.
The meeting was cancelled and rescheduled for December.
The semester was progressing along quite nicely for Scott
however, he would be required to take and pass what is known
as comprehensive exams to be able to graduate with his master’s
degree. This would be the final requirement so he could
graduate in December with his master’s degree. During
the same time his agency acquired a few new clients that
would use his agency for their services. The director of
the program and Scott were discussing how to have him to
take this comprehensive exam for several months before.
Scott thought everything was set up for him to take the
exam on a certain date. The Friday before the exam he called
Dr. Dixon and asked her about the final preparations for
him. He didn’t talk to her because she had already
left for a meeting in Washington D.C. during the next week
but she left him a message about him tape recording his
answers to the questions. He didn’t feel comfortable
with this idea due to his speech impairment and not knowing
if certain professors would be able to understand his entire
answers to the questions on tape. He was very concerned
about this and Dr. Dixon who was the director of the rehabilitation
and mental health counseling program and was also his academic
advisor for the last four years. She was extremely helpful
towards Scott and his overall accommodations in his classes.
The next week was supposed to be the exam, and Scott was
unsure about how he would take it and do his best. He also
talked with Dr. Ferrandino that he really liked and who
was teaching the class on the internship about his situation
with the exam.
There were several attempts to reach Dr. Dixon in Washington
D.C. during this time to see a solution for his concerns.
After she came back on the next Friday which was the exam
she left a message for Scott to call her back on that Monday
to see what the department has come up with for Scott to
take the exam. The department finally recommended that someone
from the Students Disability Services would proctor the
test for Scott, but this person had to be an excellent writer
that could write everything down in the proper language
for Scott to be able to do his best.
The Students Disability Services office had a court reporter
on file to have her come to the university and help students
with disabilities take their exams. This idea was excellent
for everyone concerned. Scott would be allowed as much time
as he needed to take the exam. The woman would be available
in the late afternoon because she had to drive over thirty
miles each way to be able to work with Scott on this last
project. The final arrangements was for him to take three
afternoons to complete the exam with each session lasting
a few hours each. There were twelve questions total and
each student would be required to answer ten of them. They
all dealt with what the students have learned during the
program. Scott finally started taking the exam on a Thursday
afternoon and then once again on that Friday. He answered
seven of the ten questions by the end of Friday and only
had three more questions to answer on the next Monday.
The next Monday Scott decided to go to the mall in the early
afternoon and to have lunch there before the exam. On the
way back home his left wheel on his wheelchair broke, and
he had difficulties steering his chair. He finally got over
to school to meet with the woman who was helping him with
the exam. He met the secretary for the program, and she
told him that the lady was still in court and she could
not come that night to help him. She wanted to make arrangements
for that Tuesday, but Scott told her that he had to get
his wheelchair fixed the next day. This was the week of
Thanksgiving so the school would be closed Thursday and
Friday. He made arrangements with the secretary for him
to complete the last set of questions that next Monday night
after Thanksgiving. He went home to Naples to spend the
weekend with his parents. His parents finally brought him
back to Tampa in the mid afternoon the Monday, and there
was a message on Scott’s answering machine telling
him that the lady could not make it that night so could
he make it the next night. Scott was somewhat concerned
about starting and stopping the exam for almost ten days.
He finally took the last set of questions and he felt confident
that he did well on the exam. He finally took his last final
exam for the group therapy class the day after he finished
with the comprehensive exam to be able to graduate with
his master’s degree.
The
next week he would be in Miami attending another Interagency
Quality Council meeting which he is very much involved with.
His parents would be driving him back and forth from Naples
to Tampa back to Naples then to Miami and then back to Tampa
which was over one thousand miles for his parents to travel
for him. He attended the IQC meeting in Miami the week he
was supposed to graduate. He was calling the secretary for
the program every couple of days to find out whether or
not he passed the exam. He called the secretary one morning
and left her a message about whether or not he passed. That
afternoon he received a message on his cell phone that he
did pass the exam and would be allowed to graduate on that
next Saturday. His parents were so proud of him. He had
made arrangements to attend the graduation ceremony on Saturday,
December 11th at the USF Sundome. He and his parents would
drive back from Miami to Tampa and stay in a hotel that
Friday before he graduated. His agency now has ten clients
and nine employees working for him. He attended the graduation
ceremony early on Saturday morning, and he finally earned
his master’s degree.
Everyone who knows Scott is quite amazed with his ambition
and drive to accomplish things that were considered to be
impossible for him. He now plans on building up his agency
to help people who are like him and to continue developing
new concepts and theories regarding individuals with disabilities.
He never gave into negative stereotypes and what can or
cannot be accomplished in life. He hopes that he can play
a critical role in helping the state of Florida in providing
better services for individuals with developmental disabilities.
Scott has accomplished everything that he set out for even
with a somewhat severe physical disability. He has earned
his master’s degree and did graduate in good standing.
He continues to build his agency which continues to help
him lead a extremely full and productive life.
He thanks his parents Don and Christine Barrish who have
supported him throughout his life and without them he could
not have done this. He also wants to thank Dr. Steve Dunaway
who works for the Agency for Persons with Disabilities and
who helped him with being his supervisor for his practicum
and internship. He also wishes to thank Dr. Joe Ferrandino
and Dr. Dixon who supported Scott from the start in his
graduate studies. He also wants to thank Melissa Cortez
who helps him in the mornings and who has typed all of this.
She has been working with Scott for one year now. He also
wants to thank all the individuals that work for his agency
especially Kurt who was his first employee, and they also
have an unique friendship.
THE END!